THE MITOCHONDRIAL DISEASE EXPERIENCE
How was April 2024?
We are still in winter. I’m sure I moaned about this last month, but c’mon, it’s cold. Winter was mild, it should be spring now but the temperature has barely changed. At least nighttime doesn’t start at 5pm anymore.
Mito Pains
This month I have been hearing “music” in my head more than before, still snippets of songs but it sounds clearer. My Mito symptoms have worsened, the pain from my neck, right shoulder and right arm is constant. Surely it isn’t normal to be in pain when I move my head, type, or play the PlayStation, it gets exhausting.
Montpellier
The first couple weeks of the month were lowkey as I saved myself for seeing Bex in France. This was my first holiday in 6 years, my first solo flight since I went deaf but Ryanair couldn’t have made it easier. The holiday was a breeze as Rup drove us around and both Rup and Bex spoke for me. It was only 5 nights but it was the longest time I have spent around people for ages but we all kept it steady and I survived.
Too tired for London
I was meant to have 2 nights at my sister’s as I was flying into London but I cut the stop just to 1 night as I craved my own space. My body was breaking too, especially the right shoulder/arm.
Depression
As the month was coming to an end I felt the traits of depression come in, now I have no idea what I can expect from May when my brain plays this game.
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